Our Children


     Surrounding the question for children undiagnosed

 

Home     About Us     Connect     Our Children     Support Cause     Diagnosis Search

Undiagnosed Diseases Program

 

 

Now Accepting Applications

This is a clinical research program through the National Institute of Health (NIH) and is held at the NIH Clinical Center in Bethesda Maryland.

  • Multiple Specialist Team approach

  • Need a referral from a doctor

  • Will review records and determine acceptance

  • May ask for more information

  • If accepted, will cover cost of travel and lodging

  • Will attend up to a week

  • The visit will be individualized per patient

  • A diagnosis may not be found

For more information visit Undiagnosed Disease Program
Or Call (866) 444-8806

Links

  • Main page from the Undiagnosed Diseases Program .. Go to

  • NBC Nightly News .. Go to

  • New York Times article of a personal account of the program .. Go to

  • Blog posts of a families account of the program .. Go to

  • NewScientist Article .. Go to

  • CNNHealth Article .. Go to

MEDICAL DISCLAIMER - SWAN USA offers the information on this Web site for general educational purposes only. This information should not be used for diagnosis, nor should it be considered a replacement for consultation with a healthcare professional. If you have questions or concerns about your health, please contact your healthcare provider.

Copyright � 2006-2011 Syndromes Without A Name USA, All Rights Reserved
1745 Lorna Ln, Otsego 49078
Phone: (269) 692-2090 Toll Free (888) 880-7926