Syndromes Without A Name USA is a non-profit tax exempt organization that offers support, information and advice to families of children living with a syndrome without a name. They are often described in many different ways such as; undiagnosed syndrome, unknown diagnosis, mystery diagnosis

What is a Syndrome?

 A Syndrome is a group of signs, symptoms, or features that occur together and create a picture which may suggest the presence of a particular medical condition or disorder.

Symptoms are subjective evidence of a medical condition that are experienced by a patient and reported in the medical history such as pain, nausea, or dizziness.

Signs are objective evidence of a disorder that a physician or nurse can recognize during a physical examination such as wheezing, visual impairment, or a seizure.

Signs + Symptoms = Syndrome
? + Syndrome = Syndrome Without A Name

 SWAN USA Flyer         SWAN USA Brochure

Undiagnosed Disease Program/b>Launched by the
National Institute of Health

Researching Undiagnosed Conditions

A study that seeks to learn more about how parents of children with an undiagnosed medical condition think and feel about their child's condition.