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Syndromes Without A Name USA

Cares About Rare

The Charles August 'CAL' Long

 Undiagnosed Diseases Registry Act of 2009

The Experience of Uncertainty
Sponsored by
National Human Genome Research Institute at the National Institutes of Health

A study that seeks to learn more about how parents of children with an undiagnosed medical condition think and feel about their child's condition.

 February 28th 2010

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Undiagnosed Disease Program
Launched by the
National Institute of Health

Researching Undiagnosed Conditions

Syndromes Without A Name USA is a non-profit organization dedicated to providing support to the families of children living with an undiagnosed medical condition

What is a Syndrome?

 A Syndrome is a group of signs, symptoms, or features that occur together and create a picture which may suggest the presence of a particular medical condition or disorder.

Symptoms are subjective evidence of a medical condition that are experienced by a patient and reported in the medical history such as pain, nausea, or dizziness.

Signs are objective evidence of a disorder that a physician or nurse can recognize during a physical examination such as wheezing, visual impairment, or a seizure.


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Phone: 269-692-2090
Family Line: 888-880-SWAN
E-mail: swanusa@undiagnosed-usa.org

MEDICAL DISCLAIMER - SWAN USA offers the information on this Web site for general educational purposes only. This information should not be used for diagnosis, nor should it be considered a replacement for consultation with a healthcare professional. If you have questions or concerns about your health, please contact your healthcare provider.


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